HERC are currently advertising vacancies for two researchers in health economics (https://www.herc.ox.ac.uk/about/work-with-us).
These researchers will work across multiple projects, one of which is a project with me, titled: “Psychometric assessment of EQ-5D-5L, EQ-HWB and EQ-5D-Y-5L in rare genetic diseases”.
Genomic testing is starting to be translated into clinical practice for people with rare genetic diseases. In England, the National Health Service has recently launched a new Genomic Medicine Service. However, data on the outcomes of genomic testing is sparse, and there is uncertainty regarding the appropriate outcome measures to use. Data on the use of both established and new instruments, such as the EQ-5D-5L, EQ-HWB and EQ-5D-Y-5L, would inform more robust health technology assessment decisions in this context. This work will involve assessing the psychometric properties of the EQ-5D-5L, EQ-HWB, and EQ-5D-Y-5L instruments in adult patients and parents of children with lived experience of rare genetic diseases using mixed methods. Recruitment for this study will take place in both England and Australia, in conjunction with collaborators at the University of Melbourne, lead by Ilias Goranitis.
The closing date for applications is 12.00 noon on Thursday 03 November 2022.
If you have any questions, or would like to discuss the vacancy, please email me at firstname.lastname@example.org